Focusing on what truly matters between human beings while taking care of the business of living at the end of life is what this book is about. It offers practical, experienced-based advice and tips on handling physical changes. It gives you resources for finding help when you need it. But it also tells some of the stories of others who have made this journey as caregivers, as family, friends, partners, spouses and neighbors, stories that will to help calm and encourage you and let you know you are not alone.
"Written with a practical and light touch, some sections made me smile --and the humor makes difficult topics more bearable. I would recommend this book to anyone dealing with serious illness." Marian Grant, Robert Wood Johnson Foundation Health Policy Fellow.
" This book has been my best friend for the past few months -- a book that's stayed by my bed at night and within reach during the day, the whole time I've been taking care of my terminally ill brother. It's a smart, conversational mix of practical tips, real-life experience and honest advice, even able to make me laugh at myself when I've been all tied up in knots. Most importantly, the authors keep reminding me that I'm not alone. I suppose some people will read "OK Now What?" from cover to cover, but for me, it's been a book to flip through until I found the "Caregiver Tip" that fit the current dilemma, or a section that helped orient me to what was coming next. Being a caregiver for someone you love is hard and lonely work, and Sue Collins and Nancy Taylor Robson have been the non-judgmental friend I've needed. Thanks." Margie Elsberg
Winner of the 2016 Friendly Caregiver Award from Today's Caregiver magazine and caregiver.com
"Thank you Sue and Nancy for writing such a thorough and easily usable guide for family caregivers as we endeavor to care for our loved ones. The title says it all. We are all looking to figure out what really matters and what's next as we take the caregiver journey. This is the kind of book I wish I had when first caregiving for my loved ones, and I know that you will be a great comfort to so many family caregivers."
Gary Edward Barg, Editor-in Chief of Today's Caregiver magazine and CEO and founder of caregiver.com